About Us

Diagnosed at the tender age of 3, Jatin encountered a tumultuous path marked by not just the physical burden of Thalassemia but also the additional weight of the social stigma. His early years were marred by a lack of focus on education, as societal misconceptions often overshadowed his academic pursuits.

The common belief weighed heavily on young Jatin – that those with Thalassemia major were expected to live only until 20. This belief intensified the social stigma around his condition.

Today, at 47 years of age, he not only leads a happy & dignified life but also owns and operates a successful coffee shop at KEM Hospital.

More so, his inspirational journey is marked by selfless contributions, as he actively engages in organizing blood donation drives and extends genuine assistance to fellow warriors in navigating their physical and mental well-being. Jatin alone has organized above 150 blood donors in the last one year.

Simran's journey commenced in November 1986, when she was diagnosed with Thalassemia Major, and at just a delicate age of 3 months, Simran started her blood transfusions, casting a lingering shadow of isolation over her childhood.

By age 7, the prospect of a BMT arose for Simran as a beacon of hope, offering the promise of a lifetime free from transfusions. However, despite the agonizing procedure, which even involved significant hair loss, her body rejected the donor's marrow, creating an exceptionally challenging scenario emotionally and physically for Simran and her family.

Over the years, Simran learnt to navigate around her condition. However, it was only until a pivotal moment where she found strength and resilience to embrace a life of her dreams - Participating in advocacy sessions and conferences with Dr. Munshi, representing TSPC, she found solidarity and learnt of other Thalassemia Major warriors excelling academically and forming profound social bonds.

The power of community transformed Simran's perspective on Thalassemia, empowering her to lead a more fulfilling life.

TSPC played a crucial role by providing her a positive outlook on life, developing life-long bonds, offering her access to medical expertise, emotional counseling, and subsidising crucial medical interventions, allowing her the disposable income to pursue her dreams and indulge in her passion for travel.

Now, at 37, she is a happily married, financially independent woman, steering a thriving corporate gifting business. Simran's story is not just one of resilience but a testament to the strength that emerges from community and self-belief.

Born in Kanpur, U.P – Diagnosed as a thalassemic major at the age of 3 months. It was like a shock for parents to accept it, as they had never heard of this before. Shifted from U.P to Pune. Since then till today I am taking blood transfusion, the transfusion frequency increased as I started growing up. My age now is 22. This 22 year time period had its own set of ups and downs in my life.

As my bones were weak I got a couple of fractures, got admitted in hospital due to severe pneumonia and other infections. So it became like a challenge for my parents to keep me fit – physically and emotionally. Despite of all this I properly coped up with my secondary and higher secondary education.

Wanted to be a doctor so that I could have found a boon medicine for Thalassemia – A dream But failed! – another turning point- decided to study pure sciences then and currently pursuing my master’s degree in microbiology. Also trying on my part to help and spread awareness for the cause of Thalassemia.

This year we all heard of the corona, pandemic, covid-19, quarantine everywhere. Where many people take this negatively, I took the lockdown positively & did the things, that I really wanted to do, but couldn't do earlier, because of my busy schedule of German classes. This lockdown I have started to take my classes online.

Just after 3rd day of lockdown there was requirement of Blood & I told 3 friends to donate Blood on 26th March in Inlaks Budhrani hospital for Thalassemia warrior.

My friend Priya Vaswani and I went live on International Blood Donors Day on Instagram to create awareness about Thalassemia and Blood donation. I have also talked about Thalassemia & briefed people what it is on International Thalassemia Day - 8th May on Facebook by going live.

I have encouraged 3 donors to donate blood in July. I got a chance to give my Interview on legendary Podcast show of Abby Yoong Fast Forward your Entrepreneur Journey from Singapore to share my story.

I also got chance to give talk to Yuva Asmita Social Work group where I created awareness about Thalassemia. I feel honored to get featured for their Interview taken on Instagram where I have shared many important topics related to Thalassemia & how we can stay Positive.

I just want to tell all of you, that never underestimate youself. Always have faith & believe in yourself and God. Whenever you think Positive, you will always get Positive results in whatever you do. Keep in mind. All is well. God is always there & we can achieve anything in our life, once we decide to do so.