We work for the patients and the caregivers, today. So that there are no patients and caregivers, tomorrow.
The TSPC is dedicated to improving the welfare of Thalassemia-affected warriors by addressing key needs, actively conducting awareness and blood donation drives, and assisting economically challenged warriors in following effective treatment protocols.
Patient Welfare
Provide expertize of treatments involving different medical modalities to improve quality of life
Bone Marrow Transplant
Provide access to medical expertize and financial resources for Bone Marrow Transplants
Screening & Prevention
Create awareness to prevent Thalassemia births by conducting widespread screening
Work closely with gynaecology societies, pediatricians, health ministries & other government bodies
TPSC offers a support network that addresses both medical needs and emotional well-being.This includes end-to-end treatment costs, leukocyte filters at nominal costs, availability blood to of safe-blood and ongoing mentorship built on a foundation of positive hope and support.
TPSC offers a support network that addresses both medical needs and emotional well-being.This includes end-to-end treatment costs, leukocyte filters at nominal costs, availability blood to of safe-blood and ongoing mentorship built on a foundation of positive hope and support.
TSPC enhances the well-being of Thalassemia warriors and families through various initiatives:
While bone marrow transplant (BMT), is one of the most effective treatments for Thalassemia major, significant challenges are faced in finding a compatible donor & bearing the costs of the transplant.
TPSC has collaborated with specialized medical facilities and has offered financial assistance for BMT procedures, alleviating the financial burden on warriors and their families.
TPSC is working tirelessly to create a brighter future for Thalassemia warriors and their families, making bone marrow donation an executable reality from a distant dream
Lack of awareness about Thalassemia, the importance of carrier testing, the prohibitive costs for screening are a few challenges faced.
TSPC has encouraged gynaecologists for genetic testing, conducted widespread screening, and subsidised costs of testing, as helpful initiatives to reduce Thalassemia major births.
TSPC provides all-encompassing health screening camps at a nominal cost of Rs 500 per person, accommodating 225-250 participants per camp. The screening includes CBC, HBA2, Sugar, and Reflex molecular testing. Key insights from our activities are as follows:
TSPC’s engagement with the medical community is dynamic and robust, epitomised by our bi-annual National Conferences that bring together medical professionals. We actively engage with gynaecology societies, recognizing that testing during pregnancy is a crucial and practical step to curb Thalassemia entirely.
Additionally, we regularly host Continuing Medical Education (CME) sessions, inviting doctors from across Maharashtra. Over the years, we have successfully organised a major international conference in 2005 and a national conference in 2022, attracting a combined total of over 850 delegates.
Notably, Dr. Munshi, actively participates in numerous conferences, contributing to the exchange of knowledge and advancements in Thalassemia management.
Twice a year, TSPC facilitates essential patient gatherings, serving as pivotal forums to heighten awareness among both warriors and parents. Moreover, these gatherings aim to educate participants on diagnostic modalities, empowering individuals and their families in the effective management of Thalassemia.
TSPC actively engage in advocacy initiatives with the state and national Health Ministries. Recently, all affiliated societies across India have collaboratively signed a letter requesting a meeting with the Health Ministry, for 3 key points:
