What We Do

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We work for the patients and the caregivers, today. So that there are no patients and caregivers, tomorrow.

The TSPC is dedicated to improving the welfare of Thalassemia-affected warriors by addressing key needs, actively conducting awareness and blood donation drives, and assisting economically challenged warriors in following effective treatment protocols.

Care

Patient Welfare
Provide expertize of treatments involving different medical modalities to improve quality of life

Cure

Bone Marrow Transplant
Provide access to medical expertize and financial resources for Bone Marrow Transplants

Curb

Screening & Prevention
Create awareness to prevent Thalassemia births by conducting widespread screening

Medical & Government Advocacy

Work closely with gynaecology societies, pediatricians, health ministries & other government bodies

Challenges

TPSC offers a support network that addresses both medical needs and emotional well-being.This includes end-to-end treatment costs, leukocyte filters at nominal costs, availability blood to of safe-blood and ongoing mentorship built on a foundation of positive hope and support.

Successes

TPSC offers a support network that addresses both medical needs and emotional well-being.This includes end-to-end treatment costs, leukocyte filters at nominal costs, availability blood to of safe-blood and ongoing mentorship built on a foundation of positive hope and support.

Programs

TSPC enhances the well-being of Thalassemia warriors and families through various initiatives:

  • Subsidized Rate Leukocyte Reduction Filters: TSPC consistently provides an average of 90 filters at a subsidized rate on a monthly basis.
  • End-to-End Comprehensive Care TSPC facilitated with the Mukul Madhav Foundation(MMF) to adopt the chelation cost of 38 warriors, amounting to ₹1.85 lakhs per month
  • Rudhir - The Lifeline, Comprehensive Day Care In collaboration with Sanjeevan Hospital, Avinash Cancer Clinic and Sudarshan Cancer Hospital and Research Foundation, TSPC offers free-of-cost day care, serving as a comprehensive one-stop service for warriors.
  • Education & Financial Empowerment TSPC is dedicated to fostering independence among Thalassemia major warriors through education and employment opportunities.
  • Blood Donation Drives TSPC secures safe blood supply for more than 600 Thalassemia Major warriors in Pune through blood donation campaigns within corporate settings and universities. 100+ blood donation camps have been conducted in 3 years with a total of ~10,000+ donors, also serving as an avenue for spreading awareness.
  • Annual Health Check-up TSPC conducts comprehensive health check-ups which include holistic blood tests, ultrasound and others. The costs are distributed with 25% covered by warriors, 50% by Ruby Hospital, and 25% by TSPC. Moreover, Jupiter Hospital also does the Dexa Scan and T2 MRI free of cost for all our Thalassemia warriors.

Challenges

While bone marrow transplant (BMT), is one of the most effective treatments for Thalassemia major, significant challenges are faced in finding a compatible donor & bearing the costs of the transplant.

Successes

TPSC has collaborated with specialized medical facilities and has offered financial assistance for BMT procedures, alleviating the financial burden on warriors and their families.

Programs

TPSC is working tirelessly to create a brighter future for Thalassemia warriors and their families, making bone marrow donation an executable reality from a distant dream

  • Jupiter Hospital Jupiter Hospital is a dedicated advocate for the TPSC, and has committed to conduct 2 BMT entirely free of cost, in addition to facilitating 5 BMTs at a 50% reduced rate. The remaining 50% of the cost will be generously covered by ChildCare.
  • 9 Free of Cost HLA (Human Leucocyte Antigen) camps It have been conducted in the past 3 years, and 500+ samples have been collected to match patients and donors for BMT.
  • Bajaj Finserv Bajaj Finserv has pledged to fully fund 10 BMT’s for Thalassemia major warriors who have found a 100% sibling match

Challenges

Lack of awareness about Thalassemia, the importance of carrier testing, the prohibitive costs for screening are a few challenges faced.

Successes

TSPC has encouraged gynaecologists for genetic testing, conducted widespread screening, and subsidised costs of testing, as helpful initiatives to reduce Thalassemia major births.

Programs

TSPC provides all-encompassing health screening camps at a nominal cost of Rs 500 per person, accommodating 225-250 participants per camp. The screening includes CBC, HBA2, Sugar, and Reflex molecular testing. Key insights from our activities are as follows:

  • TSPC's widespread testing has revealed a carrier status of 2.2% compared to a 3.4% national average.
  • Over the past 5 years, TSPC has successfully screened more than 5,000 individuals at renowned corporations such as Infosys, SRPF, FIAT, Mahindra & Mahindra, Tata Consultancy Services and the Symbiosis Institute of Management to name a few.
  • With the help of MMF, in the last 6 months itself, we have tested around 2,000 students at various city colleges in Pune , Ratnagiri and Panchgini

MEDICAL & GOVERNMENT ADVOCACY

Conference

TSPC’s engagement with the medical community is dynamic and robust, epitomised by our bi-annual National Conferences that bring together medical professionals. We actively engage with gynaecology societies, recognizing that testing during pregnancy is a crucial and practical step to curb Thalassemia entirely. 

Additionally, we regularly host Continuing Medical Education (CME) sessions, inviting doctors from across Maharashtra. Over the years, we have successfully organised a major international conference in 2005 and a national conference in 2022, attracting a combined total of over 850 delegates. 

Notably, Dr. Munshi, actively participates in numerous conferences, contributing to the exchange of knowledge and advancements in Thalassemia management.

Workshop

Twice a year, TSPC facilitates essential patient gatherings, serving as pivotal forums to heighten awareness among both warriors and parents. Moreover, these gatherings aim to educate participants on diagnostic modalities, empowering individuals and their families in the effective management of Thalassemia.

Govt. Advocacy

TSPC actively engage in advocacy initiatives with the state and national Health Ministries. Recently, all affiliated societies across India have collaboratively signed a letter requesting a meeting with the Health Ministry, for 3 key points: 

  • Designation of chelation as duty-free
  • Implementation of mass-scale prevention programs for pregnant women
  • Inclusion of HbA2 testing alongside the existing mandate for sickle cell screening