President’s Message Dr. Nita Munshi
Hello and welcome to the Thalassemia Society Pune Chapter (TSPC) website! I would like to use this space to talk about our organization. TSPC was founded in 1991 by a group of people (patients, parents, and loved ones) who have over 30 years of non-profit experience in previous organizations. Our organization was founded on the belief that there is more to helping a patient than through research, drugs, and blood tests. We believe that none of this will be helpful if the patient doesn’t have hope. Hope that they can live a fun, productive, and happy life. Hope that being normal is not a fantasy but can truly be a reality. Once they have this hope instilled in them, any obstacle can easily be conquered with support and a helping hand along the way. It is our belief that the support of family, friends, and a committed non-profit organization is vital to the quality of life for all Thalassemia patients. And we are committed to providing this one-on-one, local support for the Thalassemia community in Pune and around. We want to help people in their own backyard and put hope back in their hearts. If you believe what I believe, we need your help! Please Join our mailing list, so we can keep you updated on our organization and how you can help. If you would like to be a volunteer click join-me with subject:-Yes! I am interested in volunteering , with your ideas of how you can help. Thank you for taking the time to learn about our organization. With your help, we can ensure a bright future for Thalassemia Patients everywhere.
Message from Jackie Shroff
Prevention of Thalassemia- A Major task on Hand
A well-known actor par excellence, a philanthropist, and above all a good soul & an excellent human being!!! Today we have so many children born with Thalassemia Major in India. Why is it that we have not been able to reduce the number of births? Why have we not reduced the burden of families who go through the agony of a child born with Thalassemia Major? The answer is “US” – We have not taken it upon ourselves to do something for society, to reduce that burden. The only way we can help these families is by preventing the birth of a Thalassemia Major Child. If countries Like Cyprus and Iran can do it, I am sure we too can! Let us all work towards Prevention of Thalassemia by creating awareness amongst our people by screening students, & pregnant women. Let us tell young couples planning to get married to match their Thalassemia status before matching their horoscopes. I pledge to work for the Prevention of Thalassemia and hope you all will join me in this endeavor. All good wishes to the Thalassemia Society of Pune Chapter.
Secretary Message Surendra Sitani
To achieve ZERO thalassemia new patients in Pune
As a TSPC team we are committed to achieve ZERO thalassemia new patients in Pune and we are determined to have existing thalassemia mates in Pune with best of treatment and facilities to achieve everything in life.